Friday, November 4, 2011

Need some help with Autism or PDD?

Im not sure if you will be able to help me or not. I don't know any other people with children that have autism or PDD. I guess I can start with my first concerns with my son.(who is turning 8 soon)When he was about 11 months old I asked his Dr. if him not talking and having odd behaviors was normal,(playing in the corner with strings on the carpet, and rocks etc..) he told me that he may need speech and sent me to a neurologist for speech. They told me he needed speech therapy and said he was delayed only in speech. He was at a 6 month delay. I still felt like something was being missed so I told the Dr. every time i went in that i felt like something was wrong and i kept being told that because he was a preemie it was ok.And not to mention that he was sick all the time with something!! He did speech until he was 3 and now talks better then me sometimes. He was still having the odd behaviors and was not potty trained at 4 years old. Still being told this was "normal" and kids are all different and he will go when he fells the need, don't push it. When he was in 1st grade the teacher was concerned about him paying attention so i took him back to the Dr. and they put him on focalin this cause ticks and i took him off and they put him on the daytrana patch..it was like a drug overdose..he was a zombie but the teacher was so happy that she didn't have to deal with my son acting up in cl..i took him off this and he is now on adarol witch only seems to calm him for the first hour...I told his Dr. he was still having some "weirdness" in his behaviors and acted like he had no since of time or common sense. I guess he was tired of hearing me so he sent us back to the same neurologist he had seen when he was a year old. As soon as they seen it in his chart he was diagnosed as ADHD they stop at that and said that was the problem and said to keep him on meds. Well he has ben on meds and they don't seem to be working..My point to them is if a child has a problem and you are only looking at one thing and not the others how is that going to help? I called and demanded a full psychological evaluation and when I arrived I was told they were doing an IQ test..I was blown away. So his IQ was 115 and Im glad to know that but I still don't know why they didn't do the psychological evaluation. Every time I say something to them they tell me he does not show any signs of autism because he can follow direction and make eye contact and stay in his seat with out the flapping and noise making. I know in my gut that something is and has been going on with my son..And please know that it was noted in his medical chart 3 times that there was the possibility of autism or PDD, that I had no idea about until a few months ago..why would the Dr. not tell me this but have it noted in his chart? Needless to say I am taking him back to the neurologist next week and if they don't listen to me and do a full test on him for any kind of delays or disability i will be going somewhere else. I know this is as long as a book and i hope you can kinda give me your opinion and some guidance with this.

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